I am currently providing care for a woman with cerebral palsy.
She is intelligent, witty and funny, and also a clever business woman.
Unfortunately, her use of a wheelchair and unique language (which i am currently learning) gives some ignorant (and supposedly intelligent and sensitive) people the impression of her being deaf and stupid!!
B. went into threatened pre term labour on Sunday evening at 31 weeks. She has a five year old son, but lost her daughter a couple of years ago at this gestation because of concealed placental abruption.
I had been drinking wine, so could not attend to advocate for her, but told her to go straight to the hospital. I rang ahead and the hospital were aware and waiting for her.
She was cared for by the Midwives really well, but the doctor spoke to her in a loud slow voice and babyish language, and tried to get her to take some drugs she didnt want to take, which would stop the labour.
Even though she refused, the doctor came back with a tablet to give her 'for the pain'. on further questioning, the drug was an oral version of the original drug, and the doctor changed her explanation saying it was for 'the pains', which B. refused again. She was also told that her healthy and well grown 31 week baby had a very slim chance of survival.......
B. was transferred to another hospital who had an available neonatal cot, and fortunately, was not bullied any further, and although the Midwives were very curt, and unco-operative towards me (apart from one... thanks V.) they were wonderful with B. ... she even had a specially adapted room and bed with en suite wet room and loo.
She's home now and still intact, so we are keeping our fingers crossed... and i'm not drinking until she's had this baby xx
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When I was in hospital for a month last year I developed a deep mistrust of the medical staff treating me. After I left I was given a questionnaire which asked "Was I consulted about my treatment by the doctors?" What a joke! I wasn't consulted once. I was told what was going to be done but never asked if that was what I actually wanted. I love the idea of you being a patient advocate - I just wish regular surgical patients could have one too. Perhaps there's an opening in the market you haven't spotted!
ReplyDeleteKeep up the good work!